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27-Year Battle with HIV/Aids
Wamunyota
#1 Posted : Wednesday, October 01, 2014 11:35:40 AM
Rank: Veteran


Joined: 6/23/2014
Posts: 1,652
'I would like to get married and have two children. It may or may not happen, but I believe that, since God has allowed me to live this far, then He must have a purpose for me.'

My 27 -Year Battle with HIV
Hutia Mundu!!
The optimist
#2 Posted : Wednesday, October 01, 2014 12:12:21 PM
Rank: Member


Joined: 6/14/2010
Posts: 521
Location: Nairobi
Wamunyota wrote:
'I would like to get married and have two children. It may or may not happen, but I believe that, since God has allowed me to live this far, then He must have a purpose for me.'

My 27 -Year Battle with HIV

It is touching and encouraging at the same time. I salute her for speaking up.
lovenuffs
#3 Posted : Wednesday, October 01, 2014 1:08:02 PM
Rank: New-farer


Joined: 7/9/2012
Posts: 63
Its very touching.

One lesson if you meet someone online, mpimwe kwanza before you start exploring airports. Not everyone would be honest like this lady.
If a free society cannot help the many who are poor, it cannot save the few who are rich.
Euge
#4 Posted : Wednesday, October 01, 2014 1:28:40 PM
Rank: Elder


Joined: 8/4/2008
Posts: 2,849
Location: Rupi
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.
Lord, thank you!
Swenani
#5 Posted : Wednesday, October 01, 2014 1:37:24 PM
Rank: User


Joined: 8/15/2013
Posts: 13,237
Location: Vacuum
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


You mean she collapsed and died in a night club?She must have been living a reckless life,who knowsmaybe someone had planned to chips funga her on that day
If Obiero did it, Who Am I?
Euge
#6 Posted : Wednesday, October 01, 2014 3:39:48 PM
Rank: Elder


Joined: 8/4/2008
Posts: 2,849
Location: Rupi
Swenani wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


You mean she collapsed and died in a night club?She must have been living a reckless life,who knowsmaybe someone had planned to chips funga her on that day


Kubafff!!!!
Lord, thank you!
Swenani
#7 Posted : Wednesday, October 01, 2014 4:58:16 PM
Rank: User


Joined: 8/15/2013
Posts: 13,237
Location: Vacuum
Euge wrote:
Swenani wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


You mean she collapsed and died in a night club?She must have been living a reckless life,who knowsmaybe someone had planned to chips funga her on that day


Kubafff!!!!

smile smile
If Obiero did it, Who Am I?
Rankaz13
#8 Posted : Wednesday, October 01, 2014 9:08:33 PM
Rank: Elder


Joined: 5/21/2013
Posts: 2,841
Location: Here
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad
Life is like playing a violin solo in public and learning the instrument as one goes on.
Mukiri
#9 Posted : Wednesday, October 01, 2014 10:55:35 PM
Rank: Elder


Joined: 7/11/2012
Posts: 5,222
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad

Sad.

And if the wanton shameless fish-eating talk in Wazua, is anything to go by, we have major problems.

Proverbs 19:21
Euge
#10 Posted : Wednesday, October 01, 2014 11:26:46 PM
Rank: Elder


Joined: 8/4/2008
Posts: 2,849
Location: Rupi
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


So true. The boarding system is very popular and does not help matters. The HIV + are unlikely to have the requisite dietary requirements for a person on ARVs. Teachers and other staff not equipped to provide emotional support.Parents believe kids must go to secondary boarding schools because they teach children to "be independent and responsible". Most kids are sent off to boarding schools at the onset of teenage, when they need alot of emotional support. I can show you many irresponsible adults who went to several boarding schools.
Lord, thank you!
its2013
#11 Posted : Wednesday, October 01, 2014 11:50:50 PM
Rank: Member


Joined: 1/4/2013
Posts: 255
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


In some health facilities there are efforts to carry out disclosure step by step to these kids starting from around puberty to make them aware of their condition and importance of adherance to treatment and also to address the psychosocial aspects of the disease. There is also peer counselling. I hope this gets taken up by schools as well.
Pretty hurts
Rankaz13
#12 Posted : Thursday, October 02, 2014 9:31:00 AM
Rank: Elder


Joined: 5/21/2013
Posts: 2,841
Location: Here
its2013 wrote:
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


In some health facilities there are efforts to carry out disclosure step by step to these kids starting from around puberty to make them aware of their condition and importance of adherance to treatment and also to address the psychosocial aspects of the disease. There is also peer counselling. I hope this gets taken up by schools as well.


True. Actually from around 10yrs, we encourage the care givers to begin to disclose because this is the period when most queries begin to arise. Still, I can assure you it never is easy on the young ones. It's heart breaking to say the least.
Life is like playing a violin solo in public and learning the instrument as one goes on.
urstill1
#13 Posted : Thursday, October 02, 2014 9:45:12 AM
Rank: User


Joined: 9/6/2013
Posts: 1,446
Location: In a house
Rankaz13 wrote:
its2013 wrote:
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


In some health facilities there are efforts to carry out disclosure step by step to these kids starting from around puberty to make them aware of their condition and importance of adherance to treatment and also to address the psychosocial aspects of the disease. There is also peer counselling. I hope this gets taken up by schools as well.


True. Actually from around 10yrs, we encourage the care givers to begin to disclose because this is the period when most queries begin to arise. Still, I can assure you it never is easy on the young ones. It's heart breaking to say the least.


I have that problem. Can someone advice!
Rankaz13
#14 Posted : Thursday, October 02, 2014 9:46:16 AM
Rank: Elder


Joined: 5/21/2013
Posts: 2,841
Location: Here
Euge wrote:
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


So true. The boarding system is very popular and does not help matters. The HIV + are unlikely to have the requisite dietary requirements for a person on ARVs. Teachers and other staff not equipped to provide emotional support.Parents believe kids must go to secondary boarding schools because they teach children to "be independent and responsible". Most kids are sent off to boarding schools at the onset of teenage, when they need alot of emotional support. I can show you many irresponsible adults who went to several boarding schools.


Reminds me of this 13-year old boy who once found me at the clinic and was experiencing several challenges. Firstly, in school (he was in form one at the time), they were required to participate in what in my days we called cross-country which basically entailed running along a predetermined course outside the school compound akin to the conventional marathon.

Thing is, the drugs side effects used to really wear the young man down and he really had no energy to participate in such a strenuous sport. But then, the teacher doesn't know or understand why. Given the social stigma associated with the disease the young man doesn't know if to disclose to his teacher and if so, whether to tell all or just some of them. Meantime, some of the drugs are making him sleepy (Efavirenz, one of the drugs he was on has this side effect) and teachers are berating him for dozing in class. Nyumbani nako mashida tele. The young man's mum had passed on and dad had recently remarried and since he worked far away, he was left in the care of his step mum with whom they didn't have a good relationship....I met this young man about 5yrs ago and till this day, I still recall the anguish in his voice.

To their credit, USAID played a big role in demystifying the disease. On several occasions we were called upon to train not only health care workers but also people in careers as varied as teachers, prison warders and even the police force. The goal was noble: to demistify the disease as well as enable them effectively cater to those in their charge who may have the disease.
Life is like playing a violin solo in public and learning the instrument as one goes on.
Um Sayala
#15 Posted : Thursday, October 02, 2014 1:04:07 PM
Rank: Veteran


Joined: 12/17/2010
Posts: 1,163
Location: Sudan
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad

I read that piece and i must congratulate her for winning several battles, for all that time.
"Peace is our profession, War is our business" ...Unknown
Euge
#16 Posted : Thursday, October 02, 2014 1:12:40 PM
Rank: Elder


Joined: 8/4/2008
Posts: 2,849
Location: Rupi
Rankaz13 wrote:
Euge wrote:
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


So true. The boarding system is very popular and does not help matters. The HIV + are unlikely to have the requisite dietary requirements for a person on ARVs. Teachers and other staff not equipped to provide emotional support.Parents believe kids must go to secondary boarding schools because they teach children to "be independent and responsible". Most kids are sent off to boarding schools at the onset of teenage, when they need alot of emotional support. I can show you many irresponsible adults who went to several boarding schools.


Reminds me of this 13-year old boy who once found me at the clinic and was experiencing several challenges. Firstly, in school (he was in form one at the time), they were required to participate in what in my days we called cross-country which basically entailed running along a predetermined course outside the school compound akin to the conventional marathon.

Thing is, the drugs side effects used to really wear the young man down and he really had no energy to participate in such a strenuous sport. But then, the teacher doesn't know or understand why. Given the social stigma associated with the disease the young man doesn't know if to disclose to his teacher and if so, whether to tell all or just some of them. Meantime, some of the drugs are making him sleepy (Efavirenz, one of the drugs he was on has this side effect) and teachers are berating him for dozing in class. Nyumbani nako mashida tele. The young man's mum had passed on and dad had recently remarried and since he worked far away, he was left in the care of his step mum with whom they didn't have a good relationship....I met this young man about 5yrs ago and till this day, I still recall the anguish in his voice.

To their credit, USAID played a big role in demystifying the disease. On several occasions we were called upon to train not only health care workers but also people in careers as varied as teachers, prison warders and even the police force. The goal was noble: to demistify the disease as well as enable them effectively cater to those in their charge who may have the disease.


Its a challenge even for parents especially if they are not open about their status. I know of a couple the kid who is positive (now grown in Form 1) would not visit even the grand parents for a sleep over without the parents. They would give all sorts of excuses whenever such plans would be put in place. Coz the kid should swallow the pills everyday (secretly) and the secret would leak if they get somebody else to administer the pills. Not easy for a moment.
Lord, thank you!
muandiwambeu
#17 Posted : Wednesday, July 25, 2018 5:12:30 AM
Rank: Veteran


Joined: 8/28/2015
Posts: 1,247
Euge wrote:
Rankaz13 wrote:
Euge wrote:
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


So true. The boarding system is very popular and does not help matters. The HIV + are unlikely to have the requisite dietary requirements for a person on ARVs. Teachers and other staff not equipped to provide emotional support.Parents believe kids must go to secondary boarding schools because they teach children to "be independent and responsible". Most kids are sent off to boarding schools at the onset of teenage, when they need alot of emotional support. I can show you many irresponsible adults who went to several boarding schools.


Reminds me of this 13-year old boy who once found me at the clinic and was experiencing several challenges. Firstly, in school (he was in form one at the time), they were required to participate in what in my days we called cross-country which basically entailed running along a predetermined course outside the school compound akin to the conventional marathon.

Thing is, the drugs side effects used to really wear the young man down and he really had no energy to participate in such a strenuous sport. But then, the teacher doesn't know or understand why. Given the social stigma associated with the disease the young man doesn't know if to disclose to his teacher and if so, whether to tell all or just some of them. Meantime, some of the drugs are making him sleepy (Efavirenz, one of the drugs he was on has this side effect) and teachers are berating him for dozing in class. Nyumbani nako mashida tele. The young man's mum had passed on and dad had recently remarried and since he worked far away, he was left in the care of his step mum with whom they didn't have a good relationship....I met this young man about 5yrs ago and till this day, I still recall the anguish in his voice.

To their credit, USAID played a big role in demystifying the disease. On several occasions we were called upon to train not only health care workers but also people in careers as varied as teachers, prison warders and even the police force. The goal was noble: to demistify the disease as well as enable them effectively cater to those in their charge who may have the disease.


Its a challenge even for parents especially if they are not open about their status. I know of a couple the kid who is positive (now grown in Form 1) would not visit even the grand parents for a sleep over without the parents. They would give all sorts of excuses whenever such plans would be put in place. Coz the kid should swallow the pills everyday (secretly) and the secret would leak if they get somebody else to administer the pills. Not easy for a moment.

The Internet never forgets. Now we have a breed of special creatures whom u have to handle with care,least they sneeze hellfire on you. My spinal cord is in great shape and a proud tail feather shaker.... Let's meet on the floor.
,Behold, a sower went forth to sow;....
muandiwambeu
#18 Posted : Thursday, January 24, 2019 11:28:06 AM
Rank: Veteran


Joined: 8/28/2015
Posts: 1,247
urstill1 wrote:
Rankaz13 wrote:
its2013 wrote:
Rankaz13 wrote:
Euge wrote:
Ngai! This article highlights the challenges HIV+ teens are facing. They are not getting the emotional support that they badly need. I know of one who died in F2 last year because she refused to follow diet and swallow her ARVs.


A constant feature in the line of duty. The stories we get are enough to break an adult, wacha hata mtu mzima.

Challenge mostly comes because a most were started on treatment as babies. As they age, they obviously get more curious and begin to question why they have to take drugs yet their age mates don't. This, together with teenage rebellion, if not handled well can be a recipe for disaster.

Some totally refuse further treatment until their queries are fully and satisfactorily answered. For those whose parents have died and they're now under the care of grandparents, challenges kibao.

The environment in our boarding schools doesn't help calm the young ones either.Sad


In some health facilities there are efforts to carry out disclosure step by step to these kids starting from around puberty to make them aware of their condition and importance of adherance to treatment and also to address the psychosocial aspects of the disease. There is also peer counselling. I hope this gets taken up by schools as well.


True. Actually from around 10yrs, we encourage the care givers to begin to disclose because this is the period when most queries begin to arise. Still, I can assure you it never is easy on the young ones. It's heart breaking to say the least.


I have that problem. Can someone advice!

Have u heard of GEMORA. I think u have a permanent solution now. You may not even need to explain anything after all. Good news are here! https://drive.google.com...BY--5w/view?usp=drivesdk
,Behold, a sower went forth to sow;....
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