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Bone Marrow Transplant
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webish
#11 Posted : Thursday, November 21, 2013 9:14:38 AM
Rank: Member

Joined: 10/19/2009
Posts: 671
Location: Nairobi
ali wrote:
Good Morning Wazuans,
Wish to consult briefly.
My Niece has Fanconi's Anaemia and the specialists have advised that bone marrow transplant is the only solution.
I understand the process costs between 3M-5M in India.
Do you know of any organization that can help the desperate family save this dear girl?
I know Wazuans have lots of ideas and connections.
Please help.
All Ideas, advice welcome.


First, Pole. I relate.

Not sure of this Particular condition, but I know of others whose only cure is also Bone Marrow transplant. May I ask, have you guys made a decision to do this procedure?

I'm personally still young, but would advise that, your family take time and re-evaluate whether it's worth doing the procedure..(given the success rates, donor match etc)..

On speaking to a doctor one day about it he told us: " How would you feel if one day, your (niece/daughter etc), is in a worse condition after a failed procedure?". Of course he never encouraged, But he said if one has to, consider US or even SA more than the India.
Also note, the younger the patient, the higher chance of success.

Life is joy, death is peace, but the transition is very difficult.
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maka
#12 Posted : Thursday, November 21, 2013 10:15:08 AM
Rank: Elder

Joined: 4/22/2010
Posts: 11,522
Location: Nairobi
@Webish ...pound for pound India has some of the best doctors in the world they are hell bent on being the best and its not always about money...@Ali where have we reached?
possunt quia posse videntur
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kamundu
#13 Posted : Thursday, November 21, 2013 11:47:02 AM
Rank: Member

Joined: 5/9/2011
Posts: 786
Location: Mashinani
This will not be very popular with many: but India is cheap but however there is a sudden increase of post-operative complications of patients treated there. Their post-op care is wanting, I think coz of cheap labour and accomodation. Our hospitals right here in Nairobi give better std of post op care.
Do your research thoroughly on the nursing care of the hospital you choose in India before you commit yourself.
Peace in our Homeland.
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webish
#14 Posted : Thursday, November 21, 2013 9:32:00 PM
Rank: Member

Joined: 10/19/2009
Posts: 671
Location: Nairobi
kamundu wrote:
This will not be very popular with many: but India is cheap but however there is a sudden increase of post-operative complications of patients treated there. Their post-op care is wanting, I think coz of cheap labour and accomodation. Our hospitals right here in Nairobi give better std of post op care.
Do your research thoroughly on the nursing care of the hospital you choose in India before you commit yourself.


Thank You. Exactly what I intended to mean on my Post.

Life is joy, death is peace, but the transition is very difficult.
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ali
#15 Posted : Sunday, November 24, 2013 4:35:37 PM
Rank: Veteran

Joined: 6/11/2008
Posts: 892
Am wrote:
ali wrote:
maka wrote:
ali wrote:
Am wrote:
No Idea. But I have your young one in My Prayer.


Thanks in advance for the prayers. We badly need them.


How about you start a page on facebook hizo vitu za social media...If there is a channel to send the funds I am willing to personally tell all my friends to contribute to this noble cause...and as usual its subject to confirmation (am not implying you are lying)....Talk to me...


@Maka....Thanks. Had not thought of social Media. But Good idea. will have the same created. on the validity, good point, we also need address it.


For those of us not in Twirra or Facebook, Keep us in the loop here too, and we'll Contribute.



Hello wazuans. Went silent Kidogo. Been waiting for the medical report from Daktari in KNH then we can kick start the process.
Also made a check with a few hosp in India but they all wanted to see the medical report which I didn’t have.. Doc promised to have it sent via email. ( the kid was discharged yesterday from KNH).
Planning committee will meet Kesho, Monday in Meru to lay down the plans and start the process proper.
For in him (Jesus) we live and move and have our being-Acts 17:28
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webish
#16 Posted : Sunday, November 24, 2013 9:16:10 PM
Rank: Member

Joined: 10/19/2009
Posts: 671
Location: Nairobi
All the best @Ali .

Life is joy, death is peace, but the transition is very difficult.
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radio
#17 Posted : Sunday, November 24, 2013 9:48:13 PM
Rank: Veteran

Joined: 11/9/2009
Posts: 2,003
@ali I pray for God's strength for the family and healing for the girl. Pls keep us posted so that we might help where we can.
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Am
#18 Posted : Tuesday, November 26, 2013 8:21:08 AM
Rank: Veteran

Joined: 2/21/2012
Posts: 1,739
Pamoja kwa maombi. Keep us in the loop with progress.
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God..
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Rahatupu
#19 Posted : Thursday, November 28, 2013 6:33:23 PM
Rank: Veteran

Joined: 12/4/2009
Posts: 1,982
Location: matano manne
ppole sana and wish you all the luck. what is the opinion from India? pls update.
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maclean_naomi
#20 Posted : Friday, December 13, 2013 11:59:08 AM
Rank: Hello

Joined: 12/13/2013
Posts: 1
I'm a newbie and can't help but to get in with your conversation. But before that, I wish Ali's niece to get well soon and to recover in time. For me India is the one of the best place to get treatment, specially with the case of a BMT procedure because the hospitals and the doctors are expert and well qualified compared also to some western countries hospital. A lot of well-to-do people go to India for care because they can deliver very high quality treatment at a relatively low cost. My cousin had her bone marrow transplant in India at one of the best hospital with the help of a medical tourism ( http://www.placidway.com/package/1059/ ). We were so thankful that she was able to find her match and live her life again. She was able to coped by taking one day at a time and setting simple, realistic goals for herself. This link my also be helpful: http://www.bmstindia.org...mCellRegistry/index.htm
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