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Bone Marrow Transplant
ali
#1 Posted : Wednesday, November 20, 2013 8:11:16 AM
Rank: Veteran


Joined: 6/11/2008
Posts: 892
Good Morning Wazuans,
Wish to consult briefly.
My Niece has Fanconi's Anaemia and the specialists have advised that bone marrow transplant is the only solution.
I understand the process costs between 3M-5M in India.
Do you know of any organization that can help the desperate family save this dear girl?
I know Wazuans have lots of ideas and connections.
Please help.
All Ideas, advice welcome.
For in him (Jesus) we live and move and have our being-Acts 17:28
Am
#2 Posted : Wednesday, November 20, 2013 8:17:01 AM
Rank: Veteran


Joined: 2/21/2012
Posts: 1,739
No Idea. But I have your young one in My Prayer.
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God..
ali
#3 Posted : Wednesday, November 20, 2013 8:18:37 AM
Rank: Veteran


Joined: 6/11/2008
Posts: 892
Am wrote:
No Idea. But I have your young one in My Prayer.


Thanks in advance for the prayers. We badly need them.
For in him (Jesus) we live and move and have our being-Acts 17:28
maka
#4 Posted : Wednesday, November 20, 2013 10:12:58 AM
Rank: Elder


Joined: 4/22/2010
Posts: 11,522
Location: Nairobi
ali wrote:
Am wrote:
No Idea. But I have your young one in My Prayer.


Thanks in advance for the prayers. We badly need them.


How about you start a page on facebook hizo vitu za social media...If there is a channel to send the funds I am willing to personally tell all my friends to contribute to this noble cause...and as usual its subject to confirmation (am not implying you are lying)....Talk to me...
possunt quia posse videntur
Bigchick
#5 Posted : Wednesday, November 20, 2013 10:36:15 AM
Rank: Elder


Joined: 2/8/2013
Posts: 4,068
Location: At Large.
Pole sana.May you and your family have the strength to bear the burden

Meanwhile I got this contact last week while helping a friend whose father is battling with Pancreatic cancer..

Adyar Cancer Institute In Chennai

Address:-East Canal Bank Road,GandhiNagar,Adyar,Chennai-600020.Landmark near the hospital is Micheal school.

Telephone:-044-24910754/24011526/22350241.

Hope this will be useful.

In support of Maka...We are ready to help.

God Bless






Love is beautiful and so are those who share it.With Love, Marriage is an amazing event in ones life time, the foundation of joy, happiness and success.
ali
#6 Posted : Wednesday, November 20, 2013 12:23:17 PM
Rank: Veteran


Joined: 6/11/2008
Posts: 892
Bigchick wrote:
Pole sana.May you and your family have the strength to bear the burden

Meanwhile I got this contact last week while helping a friend whose father is battling with Pancreatic cancer..

Adyar Cancer Institute In Chennai

Address:-East Canal Bank Road,GandhiNagar,Adyar,Chennai-600020.Landmark near the hospital is Micheal school.

Telephone:-044-24910754/24011526/22350241.

Hope this will be useful.

In support of Maka...We are ready to help.

God Bless



God bless you much. The number will be very useful.
For in him (Jesus) we live and move and have our being-Acts 17:28
ali
#7 Posted : Wednesday, November 20, 2013 12:31:51 PM
Rank: Veteran


Joined: 6/11/2008
Posts: 892
maka wrote:
ali wrote:
Am wrote:
No Idea. But I have your young one in My Prayer.


Thanks in advance for the prayers. We badly need them.


How about you start a page on facebook hizo vitu za social media...If there is a channel to send the funds I am willing to personally tell all my friends to contribute to this noble cause...and as usual its subject to confirmation (am not implying you are lying)....Talk to me...


@Maka....Thanks. Had not thought of social Media. But Good idea. will have the same created. on the validity, good point, we also need address it.
For in him (Jesus) we live and move and have our being-Acts 17:28
livie
#8 Posted : Wednesday, November 20, 2013 12:32:08 PM
Rank: Veteran


Joined: 11/1/2008
Posts: 834
Pole sana, may you find peace at this trying time....
If you are going to be thinking only one thing, you might as well be thinking big. -Donald J . Trump
King G
#9 Posted : Wednesday, November 20, 2013 1:10:11 PM
Rank: Elder


Joined: 6/20/2012
Posts: 3,855
Location: Othumo
Pole bro, may you have grace at this trying time and the resources to manage through.
Thieves
Am
#10 Posted : Wednesday, November 20, 2013 1:36:16 PM
Rank: Veteran


Joined: 2/21/2012
Posts: 1,739
ali wrote:
maka wrote:
ali wrote:
Am wrote:
No Idea. But I have your young one in My Prayer.


Thanks in advance for the prayers. We badly need them.


How about you start a page on facebook hizo vitu za social media...If there is a channel to send the funds I am willing to personally tell all my friends to contribute to this noble cause...and as usual its subject to confirmation (am not implying you are lying)....Talk to me...


@Maka....Thanks. Had not thought of social Media. But Good idea. will have the same created. on the validity, good point, we also need address it.


For those of us not in Twirra or Facebook, Keep us in the loop here too, and we'll Contribute.
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God..
webish
#11 Posted : Thursday, November 21, 2013 9:14:38 AM
Rank: Member


Joined: 10/19/2009
Posts: 671
Location: Nairobi
ali wrote:
Good Morning Wazuans,
Wish to consult briefly.
My Niece has Fanconi's Anaemia and the specialists have advised that bone marrow transplant is the only solution.
I understand the process costs between 3M-5M in India.
Do you know of any organization that can help the desperate family save this dear girl?
I know Wazuans have lots of ideas and connections.
Please help.
All Ideas, advice welcome.


First, Pole. I relate.

Not sure of this Particular condition, but I know of others whose only cure is also Bone Marrow transplant. May I ask, have you guys made a decision to do this procedure?

I'm personally still young, but would advise that, your family take time and re-evaluate whether it's worth doing the procedure..(given the success rates, donor match etc)..

On speaking to a doctor one day about it he told us: " How would you feel if one day, your (niece/daughter etc), is in a worse condition after a failed procedure?". Of course he never encouraged, But he said if one has to, consider US or even SA more than the India.
Also note, the younger the patient, the higher chance of success.

Life is joy, death is peace, but the transition is very difficult.
maka
#12 Posted : Thursday, November 21, 2013 10:15:08 AM
Rank: Elder


Joined: 4/22/2010
Posts: 11,522
Location: Nairobi
@Webish ...pound for pound India has some of the best doctors in the world they are hell bent on being the best and its not always about money...@Ali where have we reached?
possunt quia posse videntur
kamundu
#13 Posted : Thursday, November 21, 2013 11:47:02 AM
Rank: Member


Joined: 5/9/2011
Posts: 786
Location: Mashinani
This will not be very popular with many: but India is cheap but however there is a sudden increase of post-operative complications of patients treated there. Their post-op care is wanting, I think coz of cheap labour and accomodation. Our hospitals right here in Nairobi give better std of post op care.
Do your research thoroughly on the nursing care of the hospital you choose in India before you commit yourself.
Peace in our Homeland.
webish
#14 Posted : Thursday, November 21, 2013 9:32:00 PM
Rank: Member


Joined: 10/19/2009
Posts: 671
Location: Nairobi
kamundu wrote:
This will not be very popular with many: but India is cheap but however there is a sudden increase of post-operative complications of patients treated there. Their post-op care is wanting, I think coz of cheap labour and accomodation. Our hospitals right here in Nairobi give better std of post op care.
Do your research thoroughly on the nursing care of the hospital you choose in India before you commit yourself.


Thank You. Exactly what I intended to mean on my Post.

Life is joy, death is peace, but the transition is very difficult.
ali
#15 Posted : Sunday, November 24, 2013 4:35:37 PM
Rank: Veteran


Joined: 6/11/2008
Posts: 892
Am wrote:
ali wrote:
maka wrote:
ali wrote:
Am wrote:
No Idea. But I have your young one in My Prayer.


Thanks in advance for the prayers. We badly need them.


How about you start a page on facebook hizo vitu za social media...If there is a channel to send the funds I am willing to personally tell all my friends to contribute to this noble cause...and as usual its subject to confirmation (am not implying you are lying)....Talk to me...


@Maka....Thanks. Had not thought of social Media. But Good idea. will have the same created. on the validity, good point, we also need address it.


For those of us not in Twirra or Facebook, Keep us in the loop here too, and we'll Contribute.



Hello wazuans. Went silent Kidogo. Been waiting for the medical report from Daktari in KNH then we can kick start the process.
Also made a check with a few hosp in India but they all wanted to see the medical report which I didn’t have.. Doc promised to have it sent via email. ( the kid was discharged yesterday from KNH).
Planning committee will meet Kesho, Monday in Meru to lay down the plans and start the process proper.
For in him (Jesus) we live and move and have our being-Acts 17:28
webish
#16 Posted : Sunday, November 24, 2013 9:16:10 PM
Rank: Member


Joined: 10/19/2009
Posts: 671
Location: Nairobi
All the best @Ali .

Life is joy, death is peace, but the transition is very difficult.
radio
#17 Posted : Sunday, November 24, 2013 9:48:13 PM
Rank: Veteran


Joined: 11/9/2009
Posts: 2,003
@ali I pray for God's strength for the family and healing for the girl. Pls keep us posted so that we might help where we can.
Am
#18 Posted : Tuesday, November 26, 2013 8:21:08 AM
Rank: Veteran


Joined: 2/21/2012
Posts: 1,739
Pamoja kwa maombi. Keep us in the loop with progress.
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God..
Rahatupu
#19 Posted : Thursday, November 28, 2013 6:33:23 PM
Rank: Veteran


Joined: 12/4/2009
Posts: 1,982
Location: matano manne
ppole sana and wish you all the luck. what is the opinion from India? pls update.
maclean_naomi
#20 Posted : Friday, December 13, 2013 11:59:08 AM
Rank: Hello


Joined: 12/13/2013
Posts: 1
I'm a newbie and can't help but to get in with your conversation. But before that, I wish Ali's niece to get well soon and to recover in time. For me India is the one of the best place to get treatment, specially with the case of a BMT procedure because the hospitals and the doctors are expert and well qualified compared also to some western countries hospital. A lot of well-to-do people go to India for care because they can deliver very high quality treatment at a relatively low cost. My cousin had her bone marrow transplant in India at one of the best hospital with the help of a medical tourism ( http://www.placidway.com/package/1059/ ). We were so thankful that she was able to find her match and live her life again. She was able to coped by taking one day at a time and setting simple, realistic goals for herself. This link my also be helpful: http://www.bmstindia.org...mCellRegistry/index.htm
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