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Ericks
#21 Posted : Monday, October 12, 2009 3:53:00 PM
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Joined: 7/29/2008
Posts: 170
@ Wendz..

Is that hospital already open? from what i gather on their website is that they were suppossed to open this year....

Its just me
whatever choice you make in life make sure that you can live with it.
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Wendz
#22 Posted : Tuesday, October 13, 2009 4:05:00 AM
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@Ericks
Its operational. It was officially opened in August.

Experience is what you get when you don't get what you want.
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murenj
#23 Posted : Tuesday, October 13, 2009 4:23:00 AM
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Location: nairobi
gullen barre syndrome i suppose. no known cure as of yet. a lot of supportive care. some cases resolve gradually. others... well.but if he has money to burn......

Muthonwa a Agikuyu
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Tebes
#24 Posted : Tuesday, October 13, 2009 4:51:00 AM
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@Ericks

I feel what you are going through. Had a close relative who had a similar condition and after a series of examinations and a CT scan,she was started on tPA therapy. After a gruelling two weeks there was very little improvement and we had to take her to a different Hospital. In the case I had suspected GBS Syndrome. A patient's history can help in the diagnosis of the same. The link below sheds light on the same syndrome

http://www.medicinenet.c...re_syndrome/article.htm

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"Never regret, if its good, its wonderful. If its bad, its experience."
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Ericks
#25 Posted : Tuesday, October 13, 2009 8:05:00 AM
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@ Tebes...

Which hospital was she in? and which one did u change to? did they succeed in solving her problem??? how is she now?

Its just me
whatever choice you make in life make sure that you can live with it.
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stocksdoctor
#26 Posted : Tuesday, October 13, 2009 8:31:00 AM
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Joined: 1/25/2009
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Location: nairobi
Your friends condition fits with a group of illness known as ascending paresis/paralysis. They commonly follow a mild flu or diarrhoeal disease or even a surgical procedure. The commonest is Guillain Barre disease and the treatment is mainly supportive. The most feared complication is paralysis of the diaphram and other breathing muscles in which case one is put on a breathing machine. If finances allow,a procedure called plasmapharesis can be done to remove the offending antibodies from the patients blood.

On a positive note: 90 % recover fully within 3 to 12 months,the rest will also recover though with some residual weaknesses. The only problem is the long stay in ICU where one may acquire infections with very drug resistant pathogens.

What you need is to talk with the attending neurologist so that he can supply the family with facts and information on GBS to minimize your level of distress.

Sorry about your friend,will be praying for him.
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Sasha
#27 Posted : Tuesday, October 13, 2009 8:47:00 AM
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Joined: 9/5/2007
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More details Ericks.

My uncle suffered a stroke. At the onset of the symptoms (similar to your friend's), he was taken to Nairobi Hospital where he was diagnosed with ALS (he was 62 then). My cousins sought a 2nd opinion and were advised to go to Edendale Hospital in SA. There, they treated him for PMA (Progressive Muscular Atrophy - thank you Google). However, as the disease has no cure yet, my cousins have learnt how to manage the effects of the disease using medicaments.

Also spoke to a neurologist (in PG training) friend. She said she'd never encountered those symptoms. She however ruled our ALS as this exclusively affects older (50+ years) people. After recounting your friend's symptoms, she was of the opinion that it could be the GBS I see people mentioning below. She however stressed the importance of an accurate diagnosis. She says she knows of a very good neurologist who was at KNH, a Dr Qureshi who is also the president of the Neurological Society of Kenya. Do quick Google search to get his contacts.

All the best!








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akowally
#28 Posted : Tuesday, October 13, 2009 9:17:00 AM
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Location: Nairobi
Ericks

I am sorry about what you going through. Will be praying that he fully recovers. And yes,SK rocks. We are always together in happiness,mbuzis and sad times.

Take heart,God never brings something to us that we cannot handle. All will be well.

When we pray in praise to God,he makes a difference in our lives.
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Ericks
#29 Posted : Wednesday, October 14, 2009 5:16:00 AM
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@ All

Thanks a fortune guys.... ur invaluable advice and suggestions to this thread have been of great help.... i really appreciate it... Kudos SK family.....

Its just me
whatever choice you make in life make sure that you can live with it.
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tajiri
#30 Posted : Wednesday, October 14, 2009 10:00:00 PM
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Your friend has GBS,as you have been told by lots of people. It normally follows a viral infection. it is difficult to tell what would happen as some patients get better in weeks while others take months. Unfortunately we do not have plasmapheresis in kenya. Whats most important is respiratory support for the patient... NOT extra neurologists!! I know some hospitals are dodgy,if possible stick with Kenyatta National Hospital,the consultant will be more realistic. With fee for service,some doctors will recommend useless tests not required.
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drzhivago
#31 Posted : Thursday, October 15, 2009 6:12:00 AM
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Joined: 11/21/2007
Posts: 38
i concur with @tajiri. there's a very high likelihood your friend has GBS,the clinical signs and history are unmistikable. there is no need to move him from KNH to other hospitals whre all they can do is place him on similar life support and keep ordering more tests (unless you could take him abroad where they offer treatment for this condition). Further,KNH has enthusiastic postgrad students who are more interested in learning rather than money at this point of their careers so i think its a better bet. have you discussed GBS with the neurologists yet?

all the best


Better to be at the cause of your experience rather than at the end of it. In all situations,be cause ...
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Ericks
#32 Posted : Friday, October 16, 2009 1:06:00 PM
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@ Sasha,

How are the costs like at Edendale? btw i have been trying to contact Dr. Qureshi,all in vain,i called the contacts i got from google but no one is picking....

@ drz...

yes i have discussed with a neurologist and he said that its hard to tell how long it will take him to recover but sometimes they also refer patients to hospital outside the country especially south africa...


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